How To Help

Please contact your local representative and support fully funding the Childhood Cancer Star Act and much needed pediatric cancer research.

Every contact counts! If you need to look up your representatives, you can do so at The US House of Representatives website.

From The Alliance for Childhood Cancer:

“The Childhood Cancer Survivorship, Treatment, Access, and Research (STAR) Act is the most comprehensive childhood cancer bill ever taken up by Congress. It would expand opportunities for childhood cancer research, improve efforts to identify and track childhood cancer incidences and enhance the quality of life for childhood cancer survivors.

• Expanding Opportunities for Childhood Cancer Research: Due to the relatively small population of children with cancer and the geographic distance between these children, researching childhood cancer can be challenging. As such, the Childhood Cancer STAR Act would authorize the National Cancer Institute (NCI) to expand existing efforts to collect biospecimens for childhood cancer patients enrolled in NCI sponsored clinical trials to collect and maintain relevant clinical, biological, and demographic information on all children, adolescents, and young adults with cancer.
  
• Improving Childhood Cancer Surveillance: Building upon previous efforts, this bill would authorize grants to state cancer registries to identify and track incidences of child, adolescent, and young adult cancer. This funding would be used to identify and train reporters of childhood cancer cases, secure infrastructure to ensure early reporting and capture of child cancer incidences, and support the collection of cases into a national childhood cancer registry.
  
• Improving Quality of Life for Childhood Cancer Survivors: Unfortunately, even after beating cancer, as many as two-thirds of survivors suffer from late effects of their disease or treatment, including secondary cancers and organ damage. This legislation would enhance research on the late effects of childhood cancers, including a study on insurance coverage and payment of care for childhood cancer survivors; improve collaboration among providers so that doctors are better able to care for this population as they age; and establish a new pilot program to begin to explore innovative models of care for childhood cancer survivors.
  
• Ensuring Pediatric Expertise at the National Institutes of Health (NIH): The Childhood Cancer STAR Act would require the inclusion of at least one pediatric oncologist on the National Cancer Advisory Board and would improve childhood health reporting requirements to include pediatric cancer.”

Currently, the government is not funding pediatric cancer to the effect that they are funding other cancers. We need your help! Host a Facebook fundraiser, a lemonade stand, a car wash, or any other fundraiser you can think of to help us fight for a cure.

You can donate right here or on our Facebook page. Every dollar makes a BIG impact because we are a team of volunteers. A large majority of our funds raised goes directly to doctors fighting hard on the front lines against neuroblastoma.

Volunteer your time and skills to our organization to help us be an effective advocate for fighters of neuroblastoma and their families. Email us at neuroblastomacancersociety@gmail.com with the subject “volunteer” to sign up.

Set up your own Facebook Birthday, Giving Tuesday or other fundraiser for NCCS! We receive a large amount of our donations through social media. Your Facebook and Instagram fundraisers help us make a big difference. The money you raise goes directly to neuroblastoma research.

Feel free to contact us on our Facebook page, use our Facebook fundraiser direct link or email us at neuroblastomacancersociety@gmail.com if you need help.

If you are affected by neuroblastoma, you are not alone. Please feel welcome to join our support network of other families, patients, parents/caregivers, and survivors at: https://www.facebook.com/groups/neuroblastomasupport.